Lucia Belle is a three-year-old girl with a rare and life-threatening condition called Netherton Syndrome. Among the many challenges that Lucia and her family face is that Lucia cannot eat.

Lucia's story has now been told on "A Current Affair" (click to view the story online)

Lucia and her parents are fundraising so that they can attend the one clinic in the world (in Graz, Austria) that will wean her off tube feeding and assist her to eat orally. This will lessen the impact of her differences and empower her to integrate more effectively with children of her own age; it will make her life much more manageable while still facing the challenges that having Netherton Syndrome presents.

Please click here to read more about Lucia's story and to learn how you can help this remarkable little girl.

Note from Francesca and Tony

Thanks to all your generosity and support we will be leaving on 30 May to travel to Graz, Austria to begin the tube weaning program for Lucia on 2 June.

We hope to keep a blog of Lucia’s progress and our experience while we are away:

http://www.helpluciaeat.blogspot.com/

Thank you again.

Fran, Tony & Lucia